"WHEN OBSTACLES AND TRIALS SEEM LIKE PRISON WALLS
I DO THE LITTLE I CAN DO
AND LEAVE THE REST TO GOD
AND WHEN THERE SEEMS NO CHANCE
NO CHANGE CAN SET ME FREE FROM GRIEF AND UNCERTAINTY
I CALMLY WAIT FOR GOD".
Since December 6th I have had this agonizing uncertainty of how a loved one
will manage pain .
In anticipation of surgery , we went to confession before leaving for
California.
One day, on the Tampa highway on our way to the hospital in Weston, we
stopped to assist at Mass
Thereafter we walked to the priest , introduced ourselves and asked for
anointing of the sick .
Fr Patrick of St Martha's Parish was sort of surprised. We indeed have come
from afar. In front of the altar where the Eucharist, a sacrifice and a
sacrament was made present,, he blessed don with holy oil. We will forever
be grateful.
Oh, for the many memories of being reminded in our youth , that this was
EXTREME UNCTION and to grow up and believe this is THE ANOINTING OF THE
SICK NOT OF THE DYING!
Prior to surgery , I requested the neurologist, a Filipino, if he could
pray with my loved one.
I was advised that in the USA, people don't talk politics and religion.
The neurologist promised to keep him in his heart and m ind and will say a
prayer for him but not with him.
Hmm, this is secularization . That's the practical approach to freedom of
religion ...to living one 's faith. No discussion . Live your faith on
your own .
Tolerance?. Or is it indifference? I reminded him, we chose him because he
is a graduate of a catholic university in the Philippines. and we felt that
he could be the last praying partner before Don is led to surgery. He
smiled. My heart knew better.
Nothing stops one's search for living faith. Experiential faith of decades
will not surrender to a society that upholds freedom in a manner that faith
is to be manifested in the sanctuary. No one will stop me from clinging to
and witnessing that God is our Divine Physician.'
I called the International Services unit of the hospital and requested for a
catholic priest to be with Don before surgery. They passed me on to another
unit and after a long while I was assured they will try to get someone to
pray with him
In the midst of this journey I have learned that there are many twists and
bends.
I got an urgent call advising us that the surgery was upped to 7:30am . We
had to be at the hospital at 5:30 am. My heart knew I was going to see no
priest at the hospital but I entrusted the concern to Jesus of Nazareth and
Mother Mary.
February 19th ..morning dawned.
Don tossed and turned all night. We must have had 2 hours of sleep. Tito
Tony and Tita Laly Sorra, tony and Vilma Jacob, Weng and Jeng .
Don and I walked into the emergency unit of Cleveland Clinic. There was
stillness in our hearts..each beating to different rhythms of faith and hope
and love.
We were led to the admission unit where Don had to submit the living will.
It actually contains medical directions of what to do in case he no longer
is in a position to make decisions about a life lent to him by God.
Thereafter he was led away ..and I knew we had started our union with the
Nazarene. His Via Crucis has started..It was His, because He loves
Don, much more than I can ever love him..much more than all of us can ever
love Don.
Then..another faith experience...a miracle happened...
--
"Lord, when doubts fill my mind, when my heart is in turmoil, quiet me and
give me renewed hope and cheer" (Psalm 94:19 LB).
--
"Let nothing disturb you, nothing frighten you, all things are
passing, God is unchanging. Patience gains all; nothing is lacking to
those who have God: God alone is sufficient."
(St. Teresa of Avila)
Sunday, February 28, 2010
Monday, February 15, 2010
HAPPY VALENTINE'S DAY
DEAR ALL,
THE GREAT MYSTERY OF RELATIONSHIPS IS THAT THERE IS ONLY ONE SOURCE OF LOVE...
GOD IS LOVE
.
TODAY AND IN THE MANY DAYS OF OUR LIVES IN THE PAST AND IN DAYS TO COME,
WE CELEBRATE THAT MYSTERY WITH THOSE WE LOVE AND THOSE WE KNOW LOVE US..
WE STAY CLOSE TO THE SOURCE OF LOVE ...
WE ARE CURRENTLY AT THE VACATION VILLAGE IN THE CITY OF WESTON , FLORIDA
ANGEL AND JUN PROVIDED US THEIR TIME SHARE PRIVILEGES IN THIS FACILITY. ELAINE CLAIMS THERE IS A WATERFALL, A FOUNTAIN, A LAKE, SOMEWHERE IN THE COMPLEX...WE HAVE SEEN ONLY OUR ROOM AND THE DRIVEWAY .
THE DAY CAME AND HAS COME TO AN END..
IT WAS A BEAUTIFUL IN ITS SIMPLICITY
ELAINE WALKED IN WITH A BOUQUET OF RED ROSES
WE COULD NOT FIND A VASE. I FOUND A PITCHER. DON ARRANGED THE FLOWERS.
WE SPENT OUR WAKING HOURS QUIETLY , RESTING WHENEVER WE COULD AS MY BLOOD PRESSURE PLAYED TRICKS ON ME SINCE YESTERDAY..
WE WENT TO MASS AT THE PARISH OF ALL SAINTS..WILFULLY CHOSEN OF COURSE, BECAUSE DONS BIRTHDAY IS NOVEMBER 1
WE SPENT SOMETIME WATCHING TELEVISION.
WE WATCHED THE ALL STAR BASKETBALL GAME BETWEEN THE EAST AND THE WEST...WHICH WE DID NOT FINISH! WHO WON? LEBRON IS PAPA'S FAVORITE.
WE LEARNED HOW TO PLAY A COMPUTER GAME CALLED HEARTS.
ELAINE TAUGHT PAPA
PAPA TAUGHT ME.
THROUGHOUT THE DAY, WE ALWAYS MAKE TIME TO PRAY THE ROSARY AND VARIOUS DEVOTIONS THAT DON HAS CHOSEN.
THERE ARE TIMES HE FULLY PARTICIPATES. WHEN HIS MESTINON KEEPS HIM STRONG.
THERE ARE TIMES HE CAN EVEN SING THE SALVE REGINA
THERE ARE TIMES HE WHISPERS HE PRAYERS
OH THERE ARE TIMES HE SNORES WHILE I PRAY!!! IT HAS BEGAN TO SOUND LIKE A HYMN!!.
I HAVE LEARNED SO SOON TO LIVE WITH THE COLORFUL TIMES OF LIFE THAT GOD PROVIDES.
HE IS NOW ABLE TO LAUGH A LITTLE , SING A LITTLE, DANCE A LITTLE, EAT ENOUGH,
BUT BY SUNSET HE STARTS TO STUTTER OR GETS TIRED EASILY.
HE IS CAREFUL WHEN DRINKING WATER BECAUSE THE OTHER DAY, HE HAD SOME DIFFICULTY IN SWALLOWING.
HIS DIET IS HIGH PROTEIN..,MEAT
HE HAS BEEN ADVISED TO GET VITAMIN D ..WHICH SUNSHINE CAN WELL PROVIDE BUT WE NEVER GET TO WALK IN THE SUNSHINE...TA MALIPOTON..
HIS TAKES HIS MORNING CEREALS ALWAYS WITH WHOLE MILK...( I ASSURE YOU I AM GETTING FAT BECAUSE I EAT WHAT THE PATIENT EATS!).
THERE ARE MOMENTS I CATCH A DISTANT LOOK IN DON'S EYES AND AT THESE TIMES I FEEL THERE TOO ARE A SYMPHONY OF QUIVERINGS IN MY HEART AS I LOOK FORWARD TO THE FRIDAY, THE 19TH
I KEEP REMINDING DON AND MYSELF THAT GOD'S GIFT FOR MY BIRTHDAY WILL BE WHAT IS BEST FOR DON. THE DAY FOR HIS SURGICAL INTERVENTION IS MY BIRTHDAY AND A FRIDAY OF LENT. IT WILL BE A DAY WHEN WE WILL HAVE A SPLINTER OF THE CROSS IN OUR LIVES. BUT ALREADY I SEE BEYOND IT, I CLAIM HEALING AND THE JOY OF THE RESURRECTION .
I HEAR DON REPEATEDLY SAYING HIS CREDO BUT I KNOW IT IS NOT EASY TO JUST SURRENDER. HE HAS MANY UNWELCOMED THOUGHTS ...MANY WHAT IFS ..WHICH I KNOW IS NORMAL BUT CAUSES HIM TO FEAR THE UNKNOWN AND THE UNCERTAINTY OF IT ALL
TODAY, I KEPT REMINDING DON THAT GOD LOVES HIM MORE THAN I CAN EVER LOVE HIM
THERE ARE TIMES HE FINDS ALLTHE REASONS TO FOREGO THE SURGERY.
ELAINE REMINDED ME THAT EACH DAY IT WILL BE MORE DIFFICULT.
I AM TAKING ALL THIS ONE STEP AT A TIME AWARE THAT PRAYERS ARE BEING SAID EVERYWHERE FOR THIS GOOD AND GENEROUS AND FAITHFUL HUSBAND OF MINE.
WHEN WE CAME TO THE FACILITY TODAY, ELAINE WAS CONCERNED THAT WE WERE HERE TOO EARLY. SHE WAS ALSO AWARE THAT WE MAY HAVE TO BE REDIRECTED TO A ANOTHER FACILITY. WHEN ADVISED OF WAITING TIME NEEDED BEFORE CHECK IN SHE ADVISED THE REGISTRATION THAT PAPA WAS NOT PARTICULARLY WELL. THE LADY SAID SHE WAS GOING TO TRY TO GET A UNIT FOR US. ELAINE SAYS SHE THANKED THE LADY AND SIMPLY PRAYED.
AND OF COURSE WE WERE GIVEN A UNIT IN THIS COMPOUND. AH THE GIFT OF PRAYER AND OF FAITH.
REPEATEDLY GOD HAS FAITHFULLY WATCHED OVER US PROVIDING SIMPLE JOYS AND GREAT DELIGHTS WITH SURPRISES.
SOMETIMES WHEN I RETURN TO READ WHAT I HAVE SENT THROUGH WEEYA FOR THE BLOGSPOT, I NOTE THE TYPO ERRORS ..AND I ALSO NOTICE HOW I MISS OUT ON SOME DETAILS..AY PASENSIYA NA LANG PO
OH, I WAS INFORMED THAT PAPA NEEDS PAJAMAS WITH SHORT SLEEVED BLOUSES SO I TOLD WENG TO SIMPLY BUY THE LONG SLEEVED ONES AND I WILL CUT THE SLEEVES AND SEW THEM BY HAND.
MY PROBLEM WAS THERE IS NO SARI SARI STORE WHERE I CAN BUY ONE NEEDLE. I FORGOT THAT I CAN ALWAYS ASK THE FRONT DESK.!!! BUROD!!!
BUT ONCE AGAIN ...I THINK I WILL GET LARGE PAJAMAS FOR PAPA WITH SHORT SLEEVES.
FROM SOME GOOD SOULS.
PAPA NEEDED EYE DROPS WITHOUT PRESERVATIVES. WHO ELSE WILL COME TO HELP BUT DEAR JEAN ..YES DR JEAN CORTES AND WITH HER BOX OF EYE DROPS THE PRAYER BOOKLET ON A DEVOTION TO THE PRECIOUS BLOOD
SIGE ,,MATUROG NA NGUNA TABI AKO
HAPPY VALENTINE'S DAY.
MAMA/ TITA/ NINANG/ ATE MED
A LITTLE BIRD WHISPERED BALAY CENA UNA OFFERED A VERY ROMANTIC MEAL
AND I ALSO WAS INFORMED THAT THE CHINESE NEW YEAR WAS A SUPERBLY PREPARED MEAL.
CONGRATS CHEF DICK AN CHEF CONNIE
WELL DONE DENDEN AND BADETH AND PAOLO AND ALL THOSE WHO WERE THERE TO SERVE AND FEED...
DONT FORGET YOUR PRAYERS AT BALAY CENA UNA
MESH ..AND AMMIE YOU MUST BE ENJOYING THE SNOW IN FRANKFURT. I SAW SOME PHOTOS MESH.. KEEP ON FORWARDING
LARS AN OWNER MADE PLANE LANDED ON ONE OF THE HIGHWAYS OF THE USA
NOTHNG HAPPEND TO THE PILOT OR THE PASSEMGERS OF THE VEHICLE THAT HE HIT--
DONDON AND KRISTINE AND TYLER , HOW WAS THE AIRBALLOON SHOW?
AB, HAVE YOU FORWARDED EMAILS TO TITA ANGIE
I SENT SOME TO YSON..NO REPLY
DEAR ALL,
I THINK ELAINE HAS SENT YOU THE CREDENTIALS OF THE DOCTORS.
PLS INCLUDE DR EDWARD SAVAGE THE SURGEON AND DR VIRGILIO SALANGA THE NEUROLOGIST IN YOUR PRAYERS . MAY THE SPIRIT GUIDE THEM ON THE 19TH.
I WILL SPECIFICALLY ASK THEM TO PRAY BEFORE THE SURGERY. LETS SEE WHAT THEY TELL ME.
"Lord, when doubts fill my mind, when my heart is in turmoil, quiet me and give me renewed hope and cheer" (Psalm 94:19 LB).
--
"Let nothing disturb you, nothing frighten you, all things are passing, God is unchanging. Patience gains all; nothing is lacking to those who have God: God alone is sufficient."
(St. Teresa of Avila)
THE GREAT MYSTERY OF RELATIONSHIPS IS THAT THERE IS ONLY ONE SOURCE OF LOVE...
GOD IS LOVE
.
TODAY AND IN THE MANY DAYS OF OUR LIVES IN THE PAST AND IN DAYS TO COME,
WE CELEBRATE THAT MYSTERY WITH THOSE WE LOVE AND THOSE WE KNOW LOVE US..
WE STAY CLOSE TO THE SOURCE OF LOVE ...
WE ARE CURRENTLY AT THE VACATION VILLAGE IN THE CITY OF WESTON , FLORIDA
ANGEL AND JUN PROVIDED US THEIR TIME SHARE PRIVILEGES IN THIS FACILITY. ELAINE CLAIMS THERE IS A WATERFALL, A FOUNTAIN, A LAKE, SOMEWHERE IN THE COMPLEX...WE HAVE SEEN ONLY OUR ROOM AND THE DRIVEWAY .
THE DAY CAME AND HAS COME TO AN END..
IT WAS A BEAUTIFUL IN ITS SIMPLICITY
ELAINE WALKED IN WITH A BOUQUET OF RED ROSES
WE COULD NOT FIND A VASE. I FOUND A PITCHER. DON ARRANGED THE FLOWERS.
WE SPENT OUR WAKING HOURS QUIETLY , RESTING WHENEVER WE COULD AS MY BLOOD PRESSURE PLAYED TRICKS ON ME SINCE YESTERDAY..
WE WENT TO MASS AT THE PARISH OF ALL SAINTS..WILFULLY CHOSEN OF COURSE, BECAUSE DONS BIRTHDAY IS NOVEMBER 1
WE SPENT SOMETIME WATCHING TELEVISION.
WE WATCHED THE ALL STAR BASKETBALL GAME BETWEEN THE EAST AND THE WEST...WHICH WE DID NOT FINISH! WHO WON? LEBRON IS PAPA'S FAVORITE.
WE LEARNED HOW TO PLAY A COMPUTER GAME CALLED HEARTS.
ELAINE TAUGHT PAPA
PAPA TAUGHT ME.
THROUGHOUT THE DAY, WE ALWAYS MAKE TIME TO PRAY THE ROSARY AND VARIOUS DEVOTIONS THAT DON HAS CHOSEN.
THERE ARE TIMES HE FULLY PARTICIPATES. WHEN HIS MESTINON KEEPS HIM STRONG.
THERE ARE TIMES HE CAN EVEN SING THE SALVE REGINA
THERE ARE TIMES HE WHISPERS HE PRAYERS
OH THERE ARE TIMES HE SNORES WHILE I PRAY!!! IT HAS BEGAN TO SOUND LIKE A HYMN!!.
I HAVE LEARNED SO SOON TO LIVE WITH THE COLORFUL TIMES OF LIFE THAT GOD PROVIDES.
HE IS NOW ABLE TO LAUGH A LITTLE , SING A LITTLE, DANCE A LITTLE, EAT ENOUGH,
BUT BY SUNSET HE STARTS TO STUTTER OR GETS TIRED EASILY.
HE IS CAREFUL WHEN DRINKING WATER BECAUSE THE OTHER DAY, HE HAD SOME DIFFICULTY IN SWALLOWING.
HIS DIET IS HIGH PROTEIN..,MEAT
HE HAS BEEN ADVISED TO GET VITAMIN D ..WHICH SUNSHINE CAN WELL PROVIDE BUT WE NEVER GET TO WALK IN THE SUNSHINE...TA MALIPOTON..
HIS TAKES HIS MORNING CEREALS ALWAYS WITH WHOLE MILK...( I ASSURE YOU I AM GETTING FAT BECAUSE I EAT WHAT THE PATIENT EATS!).
THERE ARE MOMENTS I CATCH A DISTANT LOOK IN DON'S EYES AND AT THESE TIMES I FEEL THERE TOO ARE A SYMPHONY OF QUIVERINGS IN MY HEART AS I LOOK FORWARD TO THE FRIDAY, THE 19TH
I KEEP REMINDING DON AND MYSELF THAT GOD'S GIFT FOR MY BIRTHDAY WILL BE WHAT IS BEST FOR DON. THE DAY FOR HIS SURGICAL INTERVENTION IS MY BIRTHDAY AND A FRIDAY OF LENT. IT WILL BE A DAY WHEN WE WILL HAVE A SPLINTER OF THE CROSS IN OUR LIVES. BUT ALREADY I SEE BEYOND IT, I CLAIM HEALING AND THE JOY OF THE RESURRECTION .
I HEAR DON REPEATEDLY SAYING HIS CREDO BUT I KNOW IT IS NOT EASY TO JUST SURRENDER. HE HAS MANY UNWELCOMED THOUGHTS ...MANY WHAT IFS ..WHICH I KNOW IS NORMAL BUT CAUSES HIM TO FEAR THE UNKNOWN AND THE UNCERTAINTY OF IT ALL
TODAY, I KEPT REMINDING DON THAT GOD LOVES HIM MORE THAN I CAN EVER LOVE HIM
THERE ARE TIMES HE FINDS ALLTHE REASONS TO FOREGO THE SURGERY.
ELAINE REMINDED ME THAT EACH DAY IT WILL BE MORE DIFFICULT.
I AM TAKING ALL THIS ONE STEP AT A TIME AWARE THAT PRAYERS ARE BEING SAID EVERYWHERE FOR THIS GOOD AND GENEROUS AND FAITHFUL HUSBAND OF MINE.
WHEN WE CAME TO THE FACILITY TODAY, ELAINE WAS CONCERNED THAT WE WERE HERE TOO EARLY. SHE WAS ALSO AWARE THAT WE MAY HAVE TO BE REDIRECTED TO A ANOTHER FACILITY. WHEN ADVISED OF WAITING TIME NEEDED BEFORE CHECK IN SHE ADVISED THE REGISTRATION THAT PAPA WAS NOT PARTICULARLY WELL. THE LADY SAID SHE WAS GOING TO TRY TO GET A UNIT FOR US. ELAINE SAYS SHE THANKED THE LADY AND SIMPLY PRAYED.
AND OF COURSE WE WERE GIVEN A UNIT IN THIS COMPOUND. AH THE GIFT OF PRAYER AND OF FAITH.
REPEATEDLY GOD HAS FAITHFULLY WATCHED OVER US PROVIDING SIMPLE JOYS AND GREAT DELIGHTS WITH SURPRISES.
SOMETIMES WHEN I RETURN TO READ WHAT I HAVE SENT THROUGH WEEYA FOR THE BLOGSPOT, I NOTE THE TYPO ERRORS ..AND I ALSO NOTICE HOW I MISS OUT ON SOME DETAILS..AY PASENSIYA NA LANG PO
OH, I WAS INFORMED THAT PAPA NEEDS PAJAMAS WITH SHORT SLEEVED BLOUSES SO I TOLD WENG TO SIMPLY BUY THE LONG SLEEVED ONES AND I WILL CUT THE SLEEVES AND SEW THEM BY HAND.
MY PROBLEM WAS THERE IS NO SARI SARI STORE WHERE I CAN BUY ONE NEEDLE. I FORGOT THAT I CAN ALWAYS ASK THE FRONT DESK.!!! BUROD!!!
BUT ONCE AGAIN ...I THINK I WILL GET LARGE PAJAMAS FOR PAPA WITH SHORT SLEEVES.
FROM SOME GOOD SOULS.
PAPA NEEDED EYE DROPS WITHOUT PRESERVATIVES. WHO ELSE WILL COME TO HELP BUT DEAR JEAN ..YES DR JEAN CORTES AND WITH HER BOX OF EYE DROPS THE PRAYER BOOKLET ON A DEVOTION TO THE PRECIOUS BLOOD
SIGE ,,MATUROG NA NGUNA TABI AKO
HAPPY VALENTINE'S DAY.
MAMA/ TITA/ NINANG/ ATE MED
A LITTLE BIRD WHISPERED BALAY CENA UNA OFFERED A VERY ROMANTIC MEAL
AND I ALSO WAS INFORMED THAT THE CHINESE NEW YEAR WAS A SUPERBLY PREPARED MEAL.
CONGRATS CHEF DICK AN CHEF CONNIE
WELL DONE DENDEN AND BADETH AND PAOLO AND ALL THOSE WHO WERE THERE TO SERVE AND FEED...
DONT FORGET YOUR PRAYERS AT BALAY CENA UNA
MESH ..AND AMMIE YOU MUST BE ENJOYING THE SNOW IN FRANKFURT. I SAW SOME PHOTOS MESH.. KEEP ON FORWARDING
LARS AN OWNER MADE PLANE LANDED ON ONE OF THE HIGHWAYS OF THE USA
NOTHNG HAPPEND TO THE PILOT OR THE PASSEMGERS OF THE VEHICLE THAT HE HIT--
DONDON AND KRISTINE AND TYLER , HOW WAS THE AIRBALLOON SHOW?
AB, HAVE YOU FORWARDED EMAILS TO TITA ANGIE
I SENT SOME TO YSON..NO REPLY
DEAR ALL,
I THINK ELAINE HAS SENT YOU THE CREDENTIALS OF THE DOCTORS.
PLS INCLUDE DR EDWARD SAVAGE THE SURGEON AND DR VIRGILIO SALANGA THE NEUROLOGIST IN YOUR PRAYERS . MAY THE SPIRIT GUIDE THEM ON THE 19TH.
I WILL SPECIFICALLY ASK THEM TO PRAY BEFORE THE SURGERY. LETS SEE WHAT THEY TELL ME.
"Lord, when doubts fill my mind, when my heart is in turmoil, quiet me and give me renewed hope and cheer" (Psalm 94:19 LB).
--
"Let nothing disturb you, nothing frighten you, all things are passing, God is unchanging. Patience gains all; nothing is lacking to those who have God: God alone is sufficient."
(St. Teresa of Avila)
Sunday, February 14, 2010
shebang shebang bang bang bang CON AMOR
THERE MUST BE FIREWORKS IN THE SKIES OF MANILA
--
"Let nothing disturb you, nothing frighten you, all things are passing, God is unchanging. Patience gains all; nothing is lacking to those who have God: God alone is sufficient."
(St. Teresa of Avila)
SHEBANG SHEBANG BANG BANG BANG
I TRANSLATE THAT INTO SSSSSSSSSSSSSSHHHHHHHHHHHEEEEEEEEEEEEEEEBANG
THE WHISTLE IS SSSSSSHHHHHHHHHHHEEEE TO THE BEAUTY OF THE FIREWORKS THAT TITO HENRY, DONDON'S FATHER IN LAW MAKES POSSIBLE EVERY NEW YEAR.
IT HAS BEEN A WEEK THAT BROUGHT US ON A ROLLER COASTER RIDE
IN A DISNEY LAND THAT OFFERED NO THRILLS OR ADVENTURE!!
I OPTED NOT TO WRITE ..AS IT DID NOT MAKE SENSE TO HAVE MORE PASSENGERS ON THE ROLLER COASTER .
AS IT WAS, WE HAD CONFUSION, ANXIETY, UNANSWERED QUESTIONS AND UNASKED QUESTIONS TOGETHER WITH FAITH AND HOPE AND PRAYERS RIDING WITH US.
WE WERE EXPOSED TO THE DOWNSIDE OF INFORMATION TECHNOLOGY ONE DAY.
WE GOT ORDERS FOR BLOOD TESTS AND IN THE HOSPITAL THEY SIMPLY GO BY CODES ...LO AND BEHOLD THE ORDER FOR ACETYLCHOLIN APPEARED AS CHOLORIDE.
TITA ANNETTE GOT THIS CONFUSION STRAIGHTENED OUT
WE GOT A COPY OF A DOCUMENT THAT SAID THAT THE SURGERY WAS FOR
THYMECTOMY AND ADRENALECTOMY WITH TUMOR EXCISION.
SLEEP DID NOT COME EASY FOR US ..AS WE WAITED FOR THE OPPORTUNITY TO SPEAK WITH MARIA FERNANDA WHO IS ASSIGNED AS OUR FINANCIAL COUNSELLOR
HAAY NAKU...COMPUTER CODES NA NAMAN WAS THE REASON
]
BUT ADRENALECTOMY WAS JUST WAY TOO FAR FROM THE STERNUM AND THE THYMUS ...WEIRD EXCUSES.
OF COURSE WE WERE BEGINNING TO BE CONCERNED
WE HAVE VERY GOOD DOCTORS BUT THE CLERKS IN THE HOSPITAL WERE HANDS WITHOUT BRAINS.
ON THE FIRST MESTINON TABLET THAT DON TOOK..HE HAD ABDOMINAL CRAMPS AND LBM AND WE ENDED UP IN THE EMERGENCY ROOM .
WELL, THE DOCTOR WHO PRESCRIBED THE MEDICINE WAS NOT AROUND SO WE HAD TO GO TO THE EMERGENCY ROOM
SO WITH THE TRAIGE ..AND THE BLOOD TESTS DON WAS NOT PARTICULARLY
HAPPY.
AND OF COURSE THE HIGHLIGHT WAS DON'S EXPERIENCE WITH THE MEDTECH..AND THE ENDLESS SIGHT OF A LITTLE BIT MORE OF BLOOD IN HIS ARM THAN HIS SPIRIT WAS WILLING TO SEE. FORTUNATELY HE DID NOT COLLAPSE.
HE WAS IN HIGH SPIRITS SAYING THAT ALL HE NEEDED WAS SANTIGUAR...ONE OF THOSE TRADITIONAL APPROACHES IN CURING THE LOCALS OF ALBAY.
ELAINE HAD A LONG DAY..DRIVING TO TAMPA IN THE EARLY MORN AND RETURNING ON THE SAME DAY. SHE WAS SO TIRED SHE SLEPT ON THE HIGHWAY. SHE MANAGED TO REST HER TIRED EYES AND GOT SOME WEARINESS AWAY FROM HER BODY. THE TRIP WAS SUPPOSEDLY ABOUT 8 TO 9 HOURS . I THINK SHE MANAGED IT IN 11 HOURS.
HER BLOOD SUGAR WAS DOWN. SHE RESTED THE DAY THEREAFTER.
WE WERE INTRODUCED BY TITA ANNETTE WHO JOINED US IN WESTON FOR 2 DAYS, TO MEALS AT WHOLE FOOD, A FANTASTIC SPECIALTY STORE FOR HEALTHY FOOD
WE HAVE BEEN THERE 2 X FOR OUR MEALS THEY ALSO HAVE A GOOD SELECTION OF CHEESE AND WINE AND OLIVES ETC..
DON HAS LEARNED TO APPRECIATE FOOD WITH HERBS. HE MANAGES TO TASTE TUNA WITH CELERY BEST
HE IS INTO HIGH PROTEIN DIET WHICH HE NEEDS FOR HIS SURGERY.SO TUNA AND SALMON ARE GOOD DISHES FOR HIM
THIS WEEK WAS MARKED WITH DELIGHT WHEN HE SPOKE WITH CYNTH AND TIDE ..(SORRY CHERYL , WE STILL HAVE TO CATCH UP WITH YOU ..WE TRIED CALLING BUT YOU MUST HAVE BEEN SLEEPING.) JUN AND NING CALLED FROM HAWAII
EVERYONE IN THE AMARANTO FAMILY SPOKE WITH HIM TOO..I REFER TO THE
YOUR AUNTS AND UNCLES ..THE AMARANTOS OF HONOLULU AND ERNIE AND MARIAN FROM COLORADO.
LIFE IS SOMETHING THAT HAPPENS ON WHILE WE ARE PLANNING SOMETHING ELSE.
AS DON HAS ALWAYS QUOTED.
TITO AUDIE BROUGHT IN THE GOOD NEWS OF THEIR FIRST GRANDCHILD A HEALTHY 7 POUNDER..
TITA MARIE WAS WITH MABEL ALL THROUGH THE LABOR AND DELIVERY
TITA ANNETTE ADVISED THAT THEY WERE GRANDPARENTS TITO MANUEL WAS WITH MARIE ALLTHROUGH LABOR AND SUBSEQUENT CAESAREAN SECTION
THEIR FIRST GRANDSON WAS ALMOST 10 POUBDA.
THE BROTHER OF TITA LALY SORRA ( SISTER IN LAW OF MAMO PING ) PASSED AWAY THIS WEEK
ELAINE RENTED A CAR FROM TAMPA AND SHE GOT AN UPGRADE SO SHE ARRIVED WITH THE MERCEDES BENZ
SHE RETURNED THE CAR THAT SHE RENTED FOR THE DAY AND GOT A MINI VAN..AY EWAN..PARANG KIA. THAT WE WILL USE FOR THE NEXT 3 WEEKS
ANGEL AND JUN CALL DAILY . THEY GAVE US 6 NIGHTS AT THE VACATION VILLAGE
THE REST OF THE DAYS UNTIL MARCH 8TH WE WILL MOST LIKELY BE AT RESIDENCE INN UNLESS WE FIND A HOUSE THAT WE CAN RENT
LET ME THANK ALL THOSE WHO HAVE TEXTED AND CALLED.
WHEN DON FEELS GOOD ..ABOUT NOON TIME HERE..HE LIKES TO SPEAK WITH FAMILY AND FRIENDS BUT BY MID AFTERNOON HE GETS TIRED.
WITH MESTINON HE DOES NOT SLUR BUT TODAY HE DID NOT TAKE MESTINON.
WELL , I LIKE TO HEAR DON SNORE.. IT HAS BECOME MUSIC TO MY EARS.
THE DOCTOR SAYS HE SHOULD TAKE MESTINON AT NIGHT SO THAT HE CAN BE SURE THAT HE HAS NO DIFFICULTY IN BREATHING
SADLY HIS HYPERTENSION MEDICINES WERE LEFT WITH THE REST OF OUR THINGS IN THE HOUSE OF TITO MANUEL AND TITA ANNETTE SO TOMORROW WE NEED TO GET A PRESCRIPTION AND BUY.
TODAY WE HAD A LAUNDRY LADY COME IN TO WASH AND TO IRON. SO ALL OUR BAGS ARE PACKED FOR OUR VALENTINES DAY SPECIAL AT THE VACATION VILLAGE
TO ALL OF YOU , LOVED FAMILY AND FRIENDS....MAY THE DAY REMIND US OF THE CONSTANT LOVE OF GOD..HIS STEADFAST LOVE THAT NEVER CEASES ..HIS MERCIES THAT NEVER COME TO AN END.
DON SAYS ...HAPPY VALENTINE!!
HUGS FROM THE VILLANUEVAS IN ROOM 316 AT MARRIOTT COURTYARD
PLANTATION ,FLORIDA
PAPA DON MAMA MED AND ATE WEE
LARS I TUNES HAVE BROUGHT US MUSIC..THANKS
AB.SORRY TO WAKE YOU UP
I WONDER IF MESH DISCUSSED THE CONCERN WITH AMEXCO WITH YOU
DENDEN WE HAVE BEEN HOPING WE COULD CHAT
DONDON ..THANKS FOR THE CHAT TIME
TYLER , WILL WE SEE YOU AGAIN ? AND KRISTINE TOO? AND ELLIE AND HENRY?
--
"Lord, when doubts fill my mind, when my heart is in turmoil, quiet me and give me renewed hope and cheer" (Psalm 94:19 LB).
I TRANSLATE THAT INTO SSSSSSSSSSSSSSHHHHHHHHHHHEEEEEEEEEEEEEEEBANG
THE WHISTLE IS SSSSSSHHHHHHHHHHHEEEE TO THE BEAUTY OF THE FIREWORKS THAT TITO HENRY, DONDON'S FATHER IN LAW MAKES POSSIBLE EVERY NEW YEAR.
IT HAS BEEN A WEEK THAT BROUGHT US ON A ROLLER COASTER RIDE
IN A DISNEY LAND THAT OFFERED NO THRILLS OR ADVENTURE!!
I OPTED NOT TO WRITE ..AS IT DID NOT MAKE SENSE TO HAVE MORE PASSENGERS ON THE ROLLER COASTER .
AS IT WAS, WE HAD CONFUSION, ANXIETY, UNANSWERED QUESTIONS AND UNASKED QUESTIONS TOGETHER WITH FAITH AND HOPE AND PRAYERS RIDING WITH US.
WE WERE EXPOSED TO THE DOWNSIDE OF INFORMATION TECHNOLOGY ONE DAY.
WE GOT ORDERS FOR BLOOD TESTS AND IN THE HOSPITAL THEY SIMPLY GO BY CODES ...LO AND BEHOLD THE ORDER FOR ACETYLCHOLIN APPEARED AS CHOLORIDE.
TITA ANNETTE GOT THIS CONFUSION STRAIGHTENED OUT
WE GOT A COPY OF A DOCUMENT THAT SAID THAT THE SURGERY WAS FOR
THYMECTOMY AND ADRENALECTOMY WITH TUMOR EXCISION.
SLEEP DID NOT COME EASY FOR US ..AS WE WAITED FOR THE OPPORTUNITY TO SPEAK WITH MARIA FERNANDA WHO IS ASSIGNED AS OUR FINANCIAL COUNSELLOR
HAAY NAKU...COMPUTER CODES NA NAMAN WAS THE REASON
]
BUT ADRENALECTOMY WAS JUST WAY TOO FAR FROM THE STERNUM AND THE THYMUS ...WEIRD EXCUSES.
OF COURSE WE WERE BEGINNING TO BE CONCERNED
WE HAVE VERY GOOD DOCTORS BUT THE CLERKS IN THE HOSPITAL WERE HANDS WITHOUT BRAINS.
ON THE FIRST MESTINON TABLET THAT DON TOOK..HE HAD ABDOMINAL CRAMPS AND LBM AND WE ENDED UP IN THE EMERGENCY ROOM .
WELL, THE DOCTOR WHO PRESCRIBED THE MEDICINE WAS NOT AROUND SO WE HAD TO GO TO THE EMERGENCY ROOM
SO WITH THE TRAIGE ..AND THE BLOOD TESTS DON WAS NOT PARTICULARLY
HAPPY.
AND OF COURSE THE HIGHLIGHT WAS DON'S EXPERIENCE WITH THE MEDTECH..AND THE ENDLESS SIGHT OF A LITTLE BIT MORE OF BLOOD IN HIS ARM THAN HIS SPIRIT WAS WILLING TO SEE. FORTUNATELY HE DID NOT COLLAPSE.
HE WAS IN HIGH SPIRITS SAYING THAT ALL HE NEEDED WAS SANTIGUAR...ONE OF THOSE TRADITIONAL APPROACHES IN CURING THE LOCALS OF ALBAY.
ELAINE HAD A LONG DAY..DRIVING TO TAMPA IN THE EARLY MORN AND RETURNING ON THE SAME DAY. SHE WAS SO TIRED SHE SLEPT ON THE HIGHWAY. SHE MANAGED TO REST HER TIRED EYES AND GOT SOME WEARINESS AWAY FROM HER BODY. THE TRIP WAS SUPPOSEDLY ABOUT 8 TO 9 HOURS . I THINK SHE MANAGED IT IN 11 HOURS.
HER BLOOD SUGAR WAS DOWN. SHE RESTED THE DAY THEREAFTER.
WE WERE INTRODUCED BY TITA ANNETTE WHO JOINED US IN WESTON FOR 2 DAYS, TO MEALS AT WHOLE FOOD, A FANTASTIC SPECIALTY STORE FOR HEALTHY FOOD
WE HAVE BEEN THERE 2 X FOR OUR MEALS THEY ALSO HAVE A GOOD SELECTION OF CHEESE AND WINE AND OLIVES ETC..
DON HAS LEARNED TO APPRECIATE FOOD WITH HERBS. HE MANAGES TO TASTE TUNA WITH CELERY BEST
HE IS INTO HIGH PROTEIN DIET WHICH HE NEEDS FOR HIS SURGERY.SO TUNA AND SALMON ARE GOOD DISHES FOR HIM
THIS WEEK WAS MARKED WITH DELIGHT WHEN HE SPOKE WITH CYNTH AND TIDE ..(SORRY CHERYL , WE STILL HAVE TO CATCH UP WITH YOU ..WE TRIED CALLING BUT YOU MUST HAVE BEEN SLEEPING.) JUN AND NING CALLED FROM HAWAII
EVERYONE IN THE AMARANTO FAMILY SPOKE WITH HIM TOO..I REFER TO THE
YOUR AUNTS AND UNCLES ..THE AMARANTOS OF HONOLULU AND ERNIE AND MARIAN FROM COLORADO.
LIFE IS SOMETHING THAT HAPPENS ON WHILE WE ARE PLANNING SOMETHING ELSE.
AS DON HAS ALWAYS QUOTED.
TITO AUDIE BROUGHT IN THE GOOD NEWS OF THEIR FIRST GRANDCHILD A HEALTHY 7 POUNDER..
TITA MARIE WAS WITH MABEL ALL THROUGH THE LABOR AND DELIVERY
TITA ANNETTE ADVISED THAT THEY WERE GRANDPARENTS TITO MANUEL WAS WITH MARIE ALLTHROUGH LABOR AND SUBSEQUENT CAESAREAN SECTION
THEIR FIRST GRANDSON WAS ALMOST 10 POUBDA.
THE BROTHER OF TITA LALY SORRA ( SISTER IN LAW OF MAMO PING ) PASSED AWAY THIS WEEK
ELAINE RENTED A CAR FROM TAMPA AND SHE GOT AN UPGRADE SO SHE ARRIVED WITH THE MERCEDES BENZ
SHE RETURNED THE CAR THAT SHE RENTED FOR THE DAY AND GOT A MINI VAN..AY EWAN..PARANG KIA. THAT WE WILL USE FOR THE NEXT 3 WEEKS
ANGEL AND JUN CALL DAILY . THEY GAVE US 6 NIGHTS AT THE VACATION VILLAGE
THE REST OF THE DAYS UNTIL MARCH 8TH WE WILL MOST LIKELY BE AT RESIDENCE INN UNLESS WE FIND A HOUSE THAT WE CAN RENT
LET ME THANK ALL THOSE WHO HAVE TEXTED AND CALLED.
WHEN DON FEELS GOOD ..ABOUT NOON TIME HERE..HE LIKES TO SPEAK WITH FAMILY AND FRIENDS BUT BY MID AFTERNOON HE GETS TIRED.
WITH MESTINON HE DOES NOT SLUR BUT TODAY HE DID NOT TAKE MESTINON.
WELL , I LIKE TO HEAR DON SNORE.. IT HAS BECOME MUSIC TO MY EARS.
THE DOCTOR SAYS HE SHOULD TAKE MESTINON AT NIGHT SO THAT HE CAN BE SURE THAT HE HAS NO DIFFICULTY IN BREATHING
SADLY HIS HYPERTENSION MEDICINES WERE LEFT WITH THE REST OF OUR THINGS IN THE HOUSE OF TITO MANUEL AND TITA ANNETTE SO TOMORROW WE NEED TO GET A PRESCRIPTION AND BUY.
TODAY WE HAD A LAUNDRY LADY COME IN TO WASH AND TO IRON. SO ALL OUR BAGS ARE PACKED FOR OUR VALENTINES DAY SPECIAL AT THE VACATION VILLAGE
TO ALL OF YOU , LOVED FAMILY AND FRIENDS....MAY THE DAY REMIND US OF THE CONSTANT LOVE OF GOD..HIS STEADFAST LOVE THAT NEVER CEASES ..HIS MERCIES THAT NEVER COME TO AN END.
DON SAYS ...HAPPY VALENTINE!!
HUGS FROM THE VILLANUEVAS IN ROOM 316 AT MARRIOTT COURTYARD
PLANTATION ,FLORIDA
PAPA DON MAMA MED AND ATE WEE
LARS I TUNES HAVE BROUGHT US MUSIC..THANKS
AB.SORRY TO WAKE YOU UP
I WONDER IF MESH DISCUSSED THE CONCERN WITH AMEXCO WITH YOU
DENDEN WE HAVE BEEN HOPING WE COULD CHAT
DONDON ..THANKS FOR THE CHAT TIME
TYLER , WILL WE SEE YOU AGAIN ? AND KRISTINE TOO? AND ELLIE AND HENRY?
--
"Lord, when doubts fill my mind, when my heart is in turmoil, quiet me and give me renewed hope and cheer" (Psalm 94:19 LB).
--
"Let nothing disturb you, nothing frighten you, all things are passing, God is unchanging. Patience gains all; nothing is lacking to those who have God: God alone is sufficient."
(St. Teresa of Avila)
Sunday, February 7, 2010
IN GOD'S TIME
PATIENCE
BE PATIENT
BE PATIENT WITH GOD
BE PATIENT WITH MYSELF
GODS TIMETABLE IS RARELY THE SAME AS MINE
I AM IN A HURRY
GOD IS NOT
GOD IS NEVER IN A HURRY
BUT HE IS ALWAYS ON TIME
40 YEARS IN THE WILDERNESS WITH MOSES
14500 DAYS OF WAITING AND WONDERING
AND GOD SAID
NOT YET
STRUGGLES AND STORMS AND SEASONS OF SUFFERING
When Habakkuk became depressed because he didn't think God was acting quickly enough,
God had this to say: "These things I plan won't happen right away.
SLOWLY
STEADILY
SURELY
A DELAY IS NOT A DENIAL FROM GOD
I REMEMBER HOW FAR I HAVE COME
I MUST FORGET
HOW FAR I HAVE TO GO
FOR GOD KNOWS THE DISTANCE
FROM MY HERE AND NOW
TO AND END
HE HAS CHOSEN
TO AN END
HE HAS DESIGNED
TO AN END
HE HAS PLANNED
FROM THEBEGINNING OF TIME
I MAY NOT BE PLEASED WHERE I AM NO
IN CONFUSION
IN UNCERTAINTY
IN BEWILDERMENT
BUT I NO LONGER AM
WHERE I USED TO BE
God Is Not Finished With Me Yet.
ONE STEP AT A TIME
EVEN THE SNAIL
REACHED NOAH'S ARK
PERSEVERE
PATIENCE
BE PATIENTWITH GOD
BE PATIENT WITH MYSELF
ONE STEP AT A TIME
AND AT GOD'S APPOINTED TIME
THE EGG
THE CATERPILLAR
THE CHRYSALIS
THE BUTTERFLY
WILL SPREAD ITS WINGS
AND FLY
AMAZING
MAGICAL MOMENTS
AWESOME
IS MY GOD!!
In search of a miracle
that is why we must hold on all the more firmly to the truths we have heard, so that we will not be carried away. (Hebrews 2:1 TEV)
SPIRITUAL MATURITY
COOPERATING WITH GOD
BELIEVING IN HIM
TRUSTING HIM ..
FULLY
GOD WORKS IN OUR LIVES
ONE SMALL STEP AT A TIME
EVERYTHING ON EARTH
HAS ITS OWN TIME
ITS OWN SEASON
"Everything on earth has its own time and its own season." (Ecclesiastes 3:1 CEV)
A SPRINGTIME ..
A SUMMER
A WINTER
A FALL
GOD ANSWERS EVERY PRAYER
EVERY PETITION
HE WIPES EACH TEAR
FROM THE EYES
OF EVERY ONE
WHO COMES TO HIM
IN PRAYER
SOMETIMES
EVER SO GRADUALLY
BUT THEN AGAIN
WITH EACH SIMPLE ASSURANCE
COMES HOPE
A SLOW STEADY STREAM OF WATER
WILL ERODE THE HARDEST ROCK
WILL QUENCH THE THIRST
OF A LONELY SOUL
INSIGHTS AND LESSONS
ABOUT LIFE
RELATIONSHIPS
THE COLLECTIVE WISDOM
OF FAMILY AND COMMUNITY
IN PRAYER
TO GOD WHO GIFTED
SOLOMON
HOW MANY LESSONS DO I NEED TO RELEARN
HOW MANY LESSONS HAVE I FORGOTTEN
WHEN WILLTHE PAIN CEASE
WILL THE HEARTACHES COME AGAIN .
AND AGAIN AND AGAIN ?
OR WILL THERE BE JOY
IN THE ANTICIPATION
IN THE SEARCH
OF A MIRACLE ?
A TEST OF FAITH
THE FAITH OF JOB?
I HOLD ON TO THE PROMISE
AND REALITY OF
GOD'S LOVE
GODS CONSTANT LOVE
AND FAITHFULNESS
Saturday, February 6, 2010
APPOINTMENT at cleveland clinic for more tests and treatment
Dear All
We got the appointment for Tuesday.
That is a grace. Thanks be to God.
Don has started the discomfort of double vision as of last night
He is resting all day as he wishes to rest his eyes
On Monday we have to leave for Cleveland Clinic in Weston Florida (ft lauderdale)
On Tuesday we meet with Dr Virgilio Salanga a Fiilipino, graduate of UST ( aha , he will pray before any procedure!!_)
We will ask how soon the thymectomy has to be planned
We will ask how soon the plasmapheresis has to be done.
A repeat of the emg is planned. MRI of the thymoma too.
Don now asks to be referred to a doctor in California for the surgery so that it will be easier for after surgery care and therapy.
Elaine recommends UCLA
WE don't know how this will come to pass. Another round of waiting for an appointment for a doctor? And who will be the doctor?
I have found a thoracic surgeon who graduated from Harvard and became the president of the American Society of Thoracic Surgeons. He also works in the Cleveland Clinic. But Papa's wishes have to be considered.
California will be closer for any subsequent visits that may be required in the future. It is practical. But...
We will be staying in a hotel recommended by the hospital and when admitted we can move to the guest house of the hospital
There is a thunderstorm today. Don't know what it is like . I do know the Lightning of God's love came through today as there was very little likelihood we could get an appointment, Standard wait is 10 days.!!
Well, we will keep on praying , won't we?
On Feb 7th is Papa Dick's 100th birthday. I believe he interceded for Don to get the appointment
We continue to pray to Father Triest.
We continue to pray to St Scholastica
We continue to do our novena to Our Lady of Lourdes.
We pray that there will be less of a progressive neuro muscular weakness.
Hereunder are the prayers for Fr Triest's Beatfication
and the prayer for his intercession.
Please join us in prayer.
Love
Mama/Medi Veronica/Med
We got the appointment for Tuesday.
That is a grace. Thanks be to God.
Don has started the discomfort of double vision as of last night
He is resting all day as he wishes to rest his eyes
On Monday we have to leave for Cleveland Clinic in Weston Florida (ft lauderdale)
On Tuesday we meet with Dr Virgilio Salanga a Fiilipino, graduate of UST ( aha , he will pray before any procedure!!_)
We will ask how soon the thymectomy has to be planned
We will ask how soon the plasmapheresis has to be done.
A repeat of the emg is planned. MRI of the thymoma too.
Don now asks to be referred to a doctor in California for the surgery so that it will be easier for after surgery care and therapy.
Elaine recommends UCLA
WE don't know how this will come to pass. Another round of waiting for an appointment for a doctor? And who will be the doctor?
I have found a thoracic surgeon who graduated from Harvard and became the president of the American Society of Thoracic Surgeons. He also works in the Cleveland Clinic. But Papa's wishes have to be considered.
California will be closer for any subsequent visits that may be required in the future. It is practical. But...
We will be staying in a hotel recommended by the hospital and when admitted we can move to the guest house of the hospital
There is a thunderstorm today. Don't know what it is like . I do know the Lightning of God's love came through today as there was very little likelihood we could get an appointment, Standard wait is 10 days.!!
Well, we will keep on praying , won't we?
On Feb 7th is Papa Dick's 100th birthday. I believe he interceded for Don to get the appointment
We continue to pray to Father Triest.
We continue to pray to St Scholastica
We continue to do our novena to Our Lady of Lourdes.
We pray that there will be less of a progressive neuro muscular weakness.
Hereunder are the prayers for Fr Triest's Beatfication
and the prayer for his intercession.
Please join us in prayer.
Love
Mama/Medi Veronica/Med
Friday, February 5, 2010
the thunderstorm was 1 thunder!!
Today is First Friday. We were at the Parish Church of St Mark for the early morning mass. There were more church goers today.
Tito Manuel left for Chapel Hill , Carolina . Marie their daughter is giving birth
Elaine drove him to the airport
Contrary to original plans I did not confirm Tito ManueLs appointment with a doctor from St Petersburg.
By God's grace we found the name of a doctor we wish to look after Papa.
Papa has now developed what is known as double vision. He was very much distrurbed . He rested most of the day
We had roasted duck again for lunch. And lechon kawali. Tita Annette is trying so hard to makehim eat. I am afraid I will have increased cholesterol. from all these
In the afternoon I called Cleveland Clinic. WE alll expected a thunderstorm but I know a lightning struck ..straight from heaven and I was able to get an appointment with Dr Virgilio Salanga formerly of UST
Papa enjoyed the crabs and the mongo and fish in coconut milk that we had for dinner. WE also had the company of Tita Annabel and tito NOel and the father of Annette and Annabel.
Tito Cesar JOvillar and his wife called. They are chiropractors from SAn Diefo who took care of me
It was Cesar who gave me a massage 29 years ago when I was disagnoses with Myasthenia.
Menchi wrote
Vilma called
Tito Tony and Tita Loly are coming tomorrow.
Elaine has a rental car ready and has negotiated for a room in Cleveland for at lest .
Svea did not call today. I hope she is feeling better
I heard that Denden has fever
I hope everyone gets healed soon
Bye for now
Mama
Tito Manuel left for Chapel Hill , Carolina . Marie their daughter is giving birth
Elaine drove him to the airport
Contrary to original plans I did not confirm Tito ManueLs appointment with a doctor from St Petersburg.
By God's grace we found the name of a doctor we wish to look after Papa.
Papa has now developed what is known as double vision. He was very much distrurbed . He rested most of the day
We had roasted duck again for lunch. And lechon kawali. Tita Annette is trying so hard to makehim eat. I am afraid I will have increased cholesterol. from all these
In the afternoon I called Cleveland Clinic. WE alll expected a thunderstorm but I know a lightning struck ..straight from heaven and I was able to get an appointment with Dr Virgilio Salanga formerly of UST
Papa enjoyed the crabs and the mongo and fish in coconut milk that we had for dinner. WE also had the company of Tita Annabel and tito NOel and the father of Annette and Annabel.
Tito Cesar JOvillar and his wife called. They are chiropractors from SAn Diefo who took care of me
It was Cesar who gave me a massage 29 years ago when I was disagnoses with Myasthenia.
Menchi wrote
Vilma called
Tito Tony and Tita Loly are coming tomorrow.
Elaine has a rental car ready and has negotiated for a room in Cleveland for at lest .
Svea did not call today. I hope she is feeling better
I heard that Denden has fever
I hope everyone gets healed soon
Bye for now
Mama
Thursday, February 4, 2010
Catching up -- journal delayed
Dear All
I have not gone back to journal writing since we left Burbank.'
We had an uneventful flight to Las Vegas and on to Tampa
We came in bymidnight.
Oh I forgot, we had some excitement in Las Vegas
There was a lock out .. We were not allowed to leave the plane.
Somebody entered the wrong door andsecurity sent an alarm..LOCKOUT , NOBODY MOVES
We had some food in Las Vegas and on to the next plane.
Yes Papa was wheeled in .
On arrival we had a hot meal. Don enjoyed the herbal dish..ala gumbo.prepared by Tita Annette, the psychiatrist aunt of Kristine
and wife of Tito Manuel who is a neonatal doctor.
and wife of Tito Manuel who is a neonatal doctor.
Themorning after we met Tito Noel, another neonatal doctor who is the brother in law of Annette His wife Annabelle is a Cancer survivor. We have not met her but have heard of her journey of faith and courage.
We rested the rest of the day.
FEB 2
The following day saw us at Mass again at ST Mark's Parish, a stewardship parish. Very modern church. May fountain /waterfall near as you enter the church.
We had blessed candles on the feast of the Presentation.
We met up with Dr Reddy, a neurologist.
He positively identified Papa's condition as myasthenia gravis.
He says a AChR blood test is not necessary
He advised that the EMG test of MMC was not that valid
Mali raw anf intensity at ang area kung saan tinusok ng needle.
He proposed that he should undergo muscle strengthening
He prescribed a medicine...same as that prescribed byDrPerez.
It costs about Usd 1.15 a piece
He also advised us to consider having the care of MG and possible surgery in Singapore. He says MG is a chronic disease and needs constant attention . He knows of people who go Singapore but he knows nothing about the facility or doctors ther .He also said that he knows the hospitals there are quite advanced. AB pls help me reseach on this when you have time and pls forward my email to Tita Angie.
Our surgeons are among the best . We told him that. But yes, we have not found a neurologist with a specialization or subspecialty in MG and we have a lot of blood tests or other procedures that are not available in Manila.
Dr Reddy proposed that we should consider plasmapheresis in preparation for surgery .
PLASMAPHERESIS,I UNDERSTAND IS LIKE DIALYSIS. IT MECHANICALLY REMOVES THE ANTIBODIES FROMTHE BLOOD STREAM.
SIYEMPRE PROBLEMANA NAMAN NATIN SI papa
MAY CATHETER KASI
It will take several hours.
The first one has to be done inthe hospital the rest can be at home.
A catheter is inserted in the arm and another one is place in the opposite hand or foot
Blood is taken from one tube, goes to a separator and then enters through the other tune back into Papa's bood stream.
The amount of blood outside thebody is not much. Less than what is ordinarily donated in a blood bank.
Necessarily, there are risks.
A drop in bood pressure or irregular heart beat,among others makes me uncomfortable.
.
Tito Manny advised to cancel our appointment at Moffitt because we patient is not ready,
He felt that they will be interested primarily in the thymoma.
There were a lot of exchanges int he meeting with Dr Reddy on ideas and treatments
FEB 3
We went to Mass with Tito Manuel and Tita Annette and Weng had the blessing of St Blaise ..Papa and I were truly grateful for the special grace of the candelaria
We spent the day at home. Elaine did the laundry. I was not well. I had a terrible headache. I also have a backache that does not go away . I rested . Then it turned out that I slept on my right arm and caused more muscle pain.
We spoke with Tita Ellie and Tito Henry on skype.
Tita Vilma and Tita Alice called in from San Francisco. They have been assuring us of prayers. They each have the cory's prayer phone. They enjoyed it.
Tita Pg emailed and advised that Tito Hector is waiting for information and will be happy to help at any time'
Tita Trini sent in an email too.
Jean Cortes and Chris V have also been supporting us with counsels and guiding us with questions to ask
Tita Melen has been helping us with research on what Stanford U Hospital can offer incase the weather does not improve in Baltimore.
Tiyen , the niece of MamoPing has had some difficulty in getting us into JohnHopkins Hospital.
TitoTony and Tita Loly, Tita Ida are waiting for my call.
I will try to write again later
We are going to Mass.
Mama
Tuesday, February 2, 2010
Day 3 (flying out of Los Angeles)
Tony and Vilma and Alice arrived and spent the day with us
We had a meal at BJ
Don had Angel's hair pasta but did not eat much
A little bit of salad.
We went to the Mass at The Imamaculate Conception Parish.
For dinner he had a rice bowl.
For viand he had vegetable chips.
NOW THAT HE ENJOYED
GARDEN VEGETABLE CHIPS WITH SEA SALT AL NATURAL NO TRANS FAT NO PRESERVATIVES
PRODUCED BY WORLD GOURMET
CHECK OUT WWWGOURMET.COM
Sleep did not come easy
He was restless until early morning, ,
CAlls and emails..
Had a long chat and orientation on hospitals in the USA ...
Manay Melen, thanks
Tony and Vi and ALice..many thanks
Thanks for the emails
Krisitne .
Mamo Ping
Gotta go...
We had a meal at BJ
Don had Angel's hair pasta but did not eat much
A little bit of salad.
We went to the Mass at The Imamaculate Conception Parish.
For dinner he had a rice bowl.
For viand he had vegetable chips.
NOW THAT HE ENJOYED
GARDEN VEGETABLE CHIPS WITH SEA SALT AL NATURAL NO TRANS FAT NO PRESERVATIVES
PRODUCED BY WORLD GOURMET
CHECK OUT WWWGOURMET.COM
Sleep did not come easy
He was restless until early morning, ,
CAlls and emails..
Had a long chat and orientation on hospitals in the USA ...
Manay Melen, thanks
Tony and Vi and ALice..many thanks
Thanks for the emails
Krisitne .
Mamo Ping
Gotta go...
Day 2 (IN Los Angeles)
DEAR ALL
DAY TWO IN LOS ANGELES
It was a good day
A RIDE WITHOUT GPS...
We got to ride the Nissa Extera that Elaine rented
IT IS LIKE YOUR S TRAIL MESH
Of course, we got lost.
So we missed Loyola Marymount Mass schedule
We ended up at St Anastacia's Parish.
St Anastacia's feast day is celebrated ON CHRISTMAS DAY!!
I only know she was supposedly beheaded.
The only ones we know with that name is SR Anastacia of Sri Lanka.
AROUND AND AROUND WE WENT..
CHINESE FOOD
Lars, Papa would have wanted to share Orange Chicken with you. We entered this resto wher a whole wall was filled with food photos. Beautifully done.. Tempting. But as Don looked through the selection/collection galore , he thought of Denden and Lourdes, France where he always feasts on DUCK. AB ,is it called CANARD? Well that he had, ROASTED DUCK!
We actually watched a program on television re Peking Duck..poultry and kitchen preparation of the duck for Americans (headless!) and the ducks for the rest of the world ... and so that must have been a-la-continuum in Papa's mind.
He did not enjoy the taste of it. He ended up eating my scallops cum spinach.
ROUND AND ROUND AND ROUND WE WENT ...
Driving through the golf courses and tree lined avenues ...
FRY'S
We dropped by to get his I TOUCH charger. Yes Tony and Vi, your birthday present of last year is in his bag..but he forgot the charger.
Oh, yes Kobe's water, cant recall what it is called but Angel and AB and Den, you must recall how that water of Kobe became his favorite mineral water..(ENERGY DRINK AND MEMORY DRINK!! DIDN'T WE ALL LAUGH SO HARD, LAST YEAR AS WE TRAVELLED EVERYWHERE AFTER THE WEDDING OF JUN AND ANGEL? Kobe water was the source of all goodness!!)
PAYLESS SHOES..
We had to get 2 pairs of CLOSED shoes for Elaine. The difficulty of getting a size 9 w in the Philippines!!
Papa did not want to come down. So as we hurried to finish the chore, I recalled he had been asking for a new belt.
Fortunately we saw a leather belt for him, just so he can let go of his favorite FOSSILS belt. He is now down to a 38 to 40
He announced he will have better pairs of pants when he gets better.
COSTCO
We stopped by to have pizza.
And we got a few things too. Fleece sweaters and pants for Elaine.
She did not have those in the convent !
No Mesh, no ROSS this time.
ST JOSEPH's PARISH
We went for Mass at St Joseph. Interestingly our Mass was bilingual Mass. A lovely lady sang Spanish songs. After mass, as we visited the Altar of the SAints, we happily saw the image of Our Lady of Charity. Aha, Mama Caring making her love and presence felt.
ATT
We tried to get a SIM CARD to replace my phone's sim.
HAAAY AMERICA, how difficult it is to buy a sim card. They keep sellingme a new phone and after I return to MANILA , and having failed to use the phone...GONE..GONE GONE .I can no longer use it.
VERIZON /T MOBILE/
Pare pareho..Same Same
CALLS..
OH TITO AUDIE HAD TONS OF FAMILY NEWS...AND SPECIAL NEWS RE GRANDCHILDREN COMING INTO THEIR LIVES..
AND THE LOST OPPORTUNITY TO GO TO VANCOUVER FOR THE WINTER GAMES. TITO AUDIE AND TITA MARIE ARE COMING ON SUNDAY.
MANAY MELEN CALLED WITH AN OFFER OF HOMEMADE SOUP.!!!AND STORIES OF HOW THEIR SENIOR CITIZENS
MEETINGS GO...THIS TIME IT STARTED WITH EVERYONE TRYION TO GROWL LIKE A TIGER!!!
JUN AND ANGEL CALLED ..JUN,OUR DEAR SON IN LAW. GOT FRUSTRATED..TRYING TO REACH US BY CALLING THE HOTEL. HONEY WE WERE EITHER SLEEPING OR OUT
WE LEFT AT 11 AM AND RETURNED AT 10 PM.
TITA ANNETTE WITH A LOT OF GOOD NEWS AND SPECIAL NEWS RE GRANDCHILD COMING THIS FEB 14TH OR 19TH.
OF COURSE 19TH IS BEST PARA MAY KABIRTHDAY AKO! .
TONY AND VILMA JACOB CALLED ANNOUNCING THEIR VISIT SATURDAY NIGHT !
TITO TONY SORRA CALLED ...GOT THE PHONE NUMBERS TITO.
Well, I have been reading ..There is a movie called INVICTUS..THE LATEST FILM OF CLINT EASTWOOD. starring Morgan Freeman as Nelson Mandela the former president of South Africa and Francois Piennar , the captain of the national rugby team.
The review by a professor of theology of University of Notre Dame is enought for me to endorse it to our movie enthusiasts (FAMILIA DEE!! FAMILIA VILLANUEVA IN MANILA). He calls it a movie of STRATEGIC INSPIRATION. ENJOY!!
I wonder if its message of enlightened, unifying leadership can be of use in the Philppine setting.
Bye for now...the 3rd days rolls on
Love
Mama/Tita /Mare/Ninang/ Med
DAY TWO IN LOS ANGELES
It was a good day
A RIDE WITHOUT GPS...
We got to ride the Nissa Extera that Elaine rented
IT IS LIKE YOUR S TRAIL MESH
Of course, we got lost.
So we missed Loyola Marymount Mass schedule
We ended up at St Anastacia's Parish.
St Anastacia's feast day is celebrated ON CHRISTMAS DAY!!
I only know she was supposedly beheaded.
The only ones we know with that name is SR Anastacia of Sri Lanka.
AROUND AND AROUND WE WENT..
CHINESE FOOD
Lars, Papa would have wanted to share Orange Chicken with you. We entered this resto wher a whole wall was filled with food photos. Beautifully done.. Tempting. But as Don looked through the selection/collection galore , he thought of Denden and Lourdes, France where he always feasts on DUCK. AB ,is it called CANARD? Well that he had, ROASTED DUCK!
We actually watched a program on television re Peking Duck..poultry and kitchen preparation of the duck for Americans (headless!) and the ducks for the rest of the world ... and so that must have been a-la-continuum in Papa's mind.
He did not enjoy the taste of it. He ended up eating my scallops cum spinach.
ROUND AND ROUND AND ROUND WE WENT ...
Driving through the golf courses and tree lined avenues ...
FRY'S
We dropped by to get his I TOUCH charger. Yes Tony and Vi, your birthday present of last year is in his bag..but he forgot the charger.
Oh, yes Kobe's water, cant recall what it is called but Angel and AB and Den, you must recall how that water of Kobe became his favorite mineral water..(ENERGY DRINK AND MEMORY DRINK!! DIDN'T WE ALL LAUGH SO HARD, LAST YEAR AS WE TRAVELLED EVERYWHERE AFTER THE WEDDING OF JUN AND ANGEL? Kobe water was the source of all goodness!!)
PAYLESS SHOES..
We had to get 2 pairs of CLOSED shoes for Elaine. The difficulty of getting a size 9 w in the Philippines!!
Papa did not want to come down. So as we hurried to finish the chore, I recalled he had been asking for a new belt.
Fortunately we saw a leather belt for him, just so he can let go of his favorite FOSSILS belt. He is now down to a 38 to 40
He announced he will have better pairs of pants when he gets better.
COSTCO
We stopped by to have pizza.
And we got a few things too. Fleece sweaters and pants for Elaine.
She did not have those in the convent !
No Mesh, no ROSS this time.
ST JOSEPH's PARISH
We went for Mass at St Joseph. Interestingly our Mass was bilingual Mass. A lovely lady sang Spanish songs. After mass, as we visited the Altar of the SAints, we happily saw the image of Our Lady of Charity. Aha, Mama Caring making her love and presence felt.
ATT
We tried to get a SIM CARD to replace my phone's sim.
HAAAY AMERICA, how difficult it is to buy a sim card. They keep sellingme a new phone and after I return to MANILA , and having failed to use the phone...GONE..GONE GONE .I can no longer use it.
VERIZON /T MOBILE/
Pare pareho..Same Same
CALLS..
OH TITO AUDIE HAD TONS OF FAMILY NEWS...AND SPECIAL NEWS RE GRANDCHILDREN COMING INTO THEIR LIVES..
AND THE LOST OPPORTUNITY TO GO TO VANCOUVER FOR THE WINTER GAMES. TITO AUDIE AND TITA MARIE ARE COMING ON SUNDAY.
MANAY MELEN CALLED WITH AN OFFER OF HOMEMADE SOUP.!!!AND STORIES OF HOW THEIR SENIOR CITIZENS
MEETINGS GO...THIS TIME IT STARTED WITH EVERYONE TRYION TO GROWL LIKE A TIGER!!!
JUN AND ANGEL CALLED ..JUN,OUR DEAR SON IN LAW. GOT FRUSTRATED..TRYING TO REACH US BY CALLING THE HOTEL. HONEY WE WERE EITHER SLEEPING OR OUT
WE LEFT AT 11 AM AND RETURNED AT 10 PM.
TITA ANNETTE WITH A LOT OF GOOD NEWS AND SPECIAL NEWS RE GRANDCHILD COMING THIS FEB 14TH OR 19TH.
OF COURSE 19TH IS BEST PARA MAY KABIRTHDAY AKO! .
TONY AND VILMA JACOB CALLED ANNOUNCING THEIR VISIT SATURDAY NIGHT !
TITO TONY SORRA CALLED ...GOT THE PHONE NUMBERS TITO.
Well, I have been reading ..There is a movie called INVICTUS..THE LATEST FILM OF CLINT EASTWOOD. starring Morgan Freeman as Nelson Mandela the former president of South Africa and Francois Piennar , the captain of the national rugby team.
The review by a professor of theology of University of Notre Dame is enought for me to endorse it to our movie enthusiasts (FAMILIA DEE!! FAMILIA VILLANUEVA IN MANILA). He calls it a movie of STRATEGIC INSPIRATION. ENJOY!!
I wonder if its message of enlightened, unifying leadership can be of use in the Philppine setting.
Bye for now...the 3rd days rolls on
Love
Mama/Tita /Mare/Ninang/ Med
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